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data.html
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---
layout: default
---
<div class="data">
<h2>How We Collect Data</h2>
<p>
Flaredown collects data using a different set of self-reportable questions for each illness, which researchers have created to quantify the severity of a patient's condition (see the <a href="http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0048967/">CDAI</a> or <a href="http://www.rheumatology.org/RAPID3_2.pdf">Rapid3</a>). The user's answers are weighted and added together to create a single score, which Flaredown graphs over time.
</p>
<p>
Because Flaredown uses these disease activity indices its data comes in a format that is accessible to research. We believe this will sidestep the "silo" problem common to health data, and allow us to test new treatments and triggers against metrics that are already widely accepted by the medical community.
</p>
<p>
By tracking their illness, Flaredown users are performing <a href="http://en.wikipedia.org/wiki/N_of_1_trial">N-of-1 trials</a> to understand the effects of symptom triggers and treatments. It's been demonstrated that aggregating N-of-1 trials is an effective way to study treatment efficacy at the population level:<br><br>
<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2963698/">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2963698/</a>
<a href="http://www.ncbi.nlm.nih.gov/pubmed/9179098">http://www.ncbi.nlm.nih.gov/pubmed/20933365</a>
</p>
<!-- <p>In some cases, this data has been shown to be a better indicator of disease severity than clinical measures [find that reference again]</p> -->
<p>If a disease activity index doesn't exist for a given condition, Flaredown defaults to a subjective 1-10 scale in which the user simply indicates how severe they feel their illness is that day. We are looking into generalized Patient-Reported Outcome Measures to cover these situations in the future.</p>
</div>
<div class="data">
<h2>Your Privacy</h2>
<p>
Using Flaredown, you'll be sending us some of your most sensitive medical information and we want you to rest easy knowing that it will indeed stay private. During normal use of Flaredown you're given options regarding your data and how it will be used within Flaredown (in accordance with our <a href="/privacy.html">Privacy Policy</a>), but we've also got your back on security. Here is an overview of some of the big steps we take to protect against things like misuse, unauthorized access or loss of data. If you have particular questions please send us an email: <a href="mailto:support@flaredown.com">support@flaredown.com</a>.
</p>
<ul>
<li>
All Flaredown data containing hardware is hosted in a private cloud infrastructure (by <a href="https://ninefold.com/">Ninefold</a>) where any and all physical access is logged. This means there are no third parties that have the ability to see your data without our consent.
</li>
<li>
Flaredown is HIPAA compliant, which means a great deal for the security and anonymity of your data.
</li>
<li>
Health data in Flaredown is stored separate from personally identifiable information and anonymized. This means that in the unlikely event your submitted data was accessed without permission, it alone would not be enough to be linked to you personally.
</li>
</ul>
<!-- <h2>And now some legalese</h2>
<h3>Data Security, Integrity and Access</h3>
<p>
Flaredown takes all reasonable steps to protect our users' information from loss, misuse and unauthorized access, disclosure, alteration and destruction. We have put in place appropriate physical, electronic and managerial procedures to safeguard and secure such information. Flaredown only processes personal information in a way that is compatible with and relevant for the purpose for which it was collected or authorized by the individual. Flaredown allows our users and website visitors access to their personal information and allows them to correct, amend or delete inaccurate information, except where the burden or expense of providing access would be disproportionate to the risks to the privacy of the individual in the case in question or where the rights of persons other than the individual would be violated.
</p> -->
</div>