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Merge pull request #108 from nbdc-datahub/dev
add redirects to all PEX pages to go to new summary page
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# Chronic Conditions
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**Full Name**: Pex Bm Health Preg I Healthhx
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**Acronym**: Exp I chroncond
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**Table Name**: `pex_bm_health_preg__chroncond`
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**Construct**: Chronic conditions and sexually transmitted infections in pregnancy
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## Administration & Quality Control
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<table class="table-no-vertical-lines" style="width: 100%; border-collapse: collapse; table-layout: fixed;">
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<tbody>
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<tr><td><b>Child Specific</b></td>
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<td>No</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Pregnant Participant</td></tr>
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<tr><td><b>Administration</b></td>
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<td style="word-wrap: break-word; white-space: normal;">Self-administered in-person</td></tr>
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<tr><td><b>Visits</b></td>
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<td>V01</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>3 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</tbody>
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</table>
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## Instrument Details
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**Exp I chroncond** captures information on chronic conditions and sexually transmitted infections (STIs) during pregnancy, including whether they are ongoing or resolved.
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# Pregnancy Health-V2 (End of Pregnancy)
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**Full Name**: Pex Bm Healthv2 Preg
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**Acronym**: Healthv2 Preg
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**Table Name**: `pex_bm_healthv2_preg`
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**Construct**: Updates information between enrollment and delivery
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<div id="warning" class="warning-banner" onclick="toggleCollapse(this)">
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<span class="emoji"><i class="fas fa-exclamation-triangle"></i></span>
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<span class="text-with-link">
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<span class="text">Data Warning: ICD & Symptom Coding</i></span>
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<a class="anchor-link" href="#warning" title="Copy link">
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<i class="fa-solid fa-link"></i>
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</a>
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</span>
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<span class="arrow">▸</span>
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</div>
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<div class="warning-collapsible-content">
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<p>There are potential issues relating to correct coding for (1) ICD codes from BioPortal ICD (used to capture reason(s) for medication use, ER visits, and hospitalizations) and (2) symptom codes from World Health Organization. For instruments utilizing these coding systems, it was at times difficult for the participant to name or HBCD Study team member conducting the survey to find the correct code/name in a databases.</p>
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</div>
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## Administration & Quality Control
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<table class="table-no-vertical-lines" style="width: 100%; border-collapse: collapse; table-layout: fixed;">
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<tbody>
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<tr><td><b>Child Specific</b></td>
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<td>No</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Birth Parent</td></tr>
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<tr><td><b>Administration</b></td>
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<td style="word-wrap: break-word; white-space: normal;">HBCD Study Staff (in person)</td></tr>
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<tr><td><b>Visits</b></td>
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<td>V02</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>10 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</tbody>
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</table>
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## Instrument Details
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**Pregnancy Health-V2** captures health updates for the birth parent between enrollment and delivery. It includes information/updates on:
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- Prenatal vitamin use
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- Aspirin intake
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- Infections and illnesses
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- Vaccinations
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- Medication use (ongoing and newly prescribed)
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- Pregnancy complications (e.g., gestational diabetes)
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- Labor and delivery details (e.g., delivery method, location, and hospital stay duration)
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# ER/Hospitalizations
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**Full Name**: Pex Bm Health Preg I Erhosp
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**Acronym**: Exp I ERhosp
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**Table Name**: `pex_bm_health_preg__erhosp`
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**Construct**: ER visit(s) or hospitalization(s) during pregnancy
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<div id="warning" class="warning-banner" onclick="toggleCollapse(this)">
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<span class="emoji"><i class="fas fa-exclamation-triangle"></i></span>
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<span class="text-with-link">
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<span class="text">Data Warning: ICD Coding</i></span>
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<a class="anchor-link" href="#warning" title="Copy link">
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<i class="fa-solid fa-link"></i>
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</a>
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</span>
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<span class="arrow">▸</span>
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</div>
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<div class="warning-collapsible-content">
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<p>There are potential issues relating to correct coding for ICD codes from BioPortal (used to capture reason(s) for medication use, ER visits, and hospitalizations). Instruments using these systems sometimes encountered difficulties either for participants attempting to describe or for HBCD Study team members trying to locate the correct ICD code.</p>
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</div>
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## Administration & Quality Control
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<table class="table-no-vertical-lines" style="width: 100%; border-collapse: collapse; table-layout: fixed;">
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<tbody>
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<tr><td><b>Child Specific</b></td>
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<td>No</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Pregnant Participant</td></tr>
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<tr><td><b>Administration</b></td>
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<td style="word-wrap: break-word; white-space: normal;">HBCD Study Staff (in person)</td></tr>
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<tr><td><b>Visits</b></td>
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<td>V01</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>5 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</tbody>
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</table>
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## Instrument Details
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**Exp I ERhosp** captures ER visit(s) or hospitalization(s) during pregnancy, including occurrence(s) and reason(s).
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# Pregnancy Health
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**Full Name**: Pex Bm Health Preg I Healthhx
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**Acronym**: Healthhx
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**Table Name**: `pex_bm_health_preg__healthhx`
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**Construct**: Pre-pregnancy and pregnancy health
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<div id="alert" class="alert-banner" onclick="toggleCollapse(this)">
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<span class="emoji"><i class="fas fa-exclamation-circle"></i></span>
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<span class="text-with-link">
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<span class="text">Responsible Use Warning: Pregnancy intention as a determinant of exposure</span>
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<a class="anchor-link" href="#alert" title="Copy link">
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<div class="alert-collapsible-content">
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<p>Amidst powerful societal expectations to ‘do what’s best for the baby’ during pregnancy (i.e. by stopping substance use), up to half of pregnancies in the United States are unintended with 1 in 5 unwanted (<a href="https://doi.org/10.1016/S2214-109X(20)30315-6">Bearak et al. 2020</a>). This discrepancy contributes to implicit bias against pregnant individuals who use substances as ‘not caring about their babies’ which is neither humane, nor evidence based (<a href="https://doi.org/10.1016/j.socscimed.2022.115071">Massey et al., 2022</a>). While cessation of substance use during pregnancy is universally recognized as optimal, the ability to make this “parental” sacrifice varies substantially between birthing individuals and within individuals between their different pregnancies (<a href="https://doi.org/10.1007/s00737-023-01396-z">Level et al., 2024</a>). Failure to recognize this inherent heterogeneity in pregnancy intention stigmatizes substance users who did not intend to want to become pregnant. Summarily, inclusion of pregnancy intention as a covariate in all studies that characterize prenatal substance exposure (in the absence of a strong justification otherwise) is thus strongly recommended to acknowledge myriad experiences of birthing parents who participated in HBCD who made this research possible.</p>
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## Administration & Quality Control
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<table class="table-no-vertical-lines" style="width: 100%; border-collapse: collapse; table-layout: fixed;">
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<tbody>
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<tr><td><b>Child Specific</b></td>
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<td>No</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Pregnant Participant</td></tr>
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<tr><td><b>Administration</b></td>
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<td style="word-wrap: break-word; white-space: normal;">Self-administered</td></tr>
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<tr><td><b>Visits</b></td>
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<td>V01</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>5 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</tbody>
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</table>
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## Instrument Details
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**Pre-Pregnancy and Pregnancy Health Outcomes Assessed:**
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- Gravidity and parity
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- Height and weight
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- Pregnancy intentions
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- Use of assisted reproductive technology
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- Start of prenatal care
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- Prenatal vitamin or aspirin use
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- Secondhand smoke
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## References
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<div class="references">
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<p>Bearak, J., Popinchalk, A., Ganatra, B., Moller, A.-B., Tunçalp, Ö., Beavin, C., Kwok, L., & Alkema, L. (2020). Unintended pregnancy and abortion by income, region, and the legal status of abortion: estimates from a comprehensive model for 1990-2019. The Lancet. Global Health, 8(9), e1152–e1161. <a href="https://doi.org/10.1016/S2214-109X(20)30315-6">https://doi.org/10.1016/S2214-109X(20)30315-6</a></p>
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<p>Level, R. A., Zhang, Y., Tiemeier, H., Estabrook, R., Shaw, D. S., Leve, L. D., Wakschlag, L. S., Reiss, D., Neiderhiser, J. M., & Massey, S. H. (2024). Unique influences of pregnancy and anticipated parenting on cigarette smoking: results and implications of a within-person, between-pregnancy study. Archives of Women’s Mental Health, 27(2), 301–308. <a href="https://doi.org/10.1007/s00737-023-01396-z">https://doi.org/10.1007/s00737-023-01396-z</a></p>
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<p>Massey, S. H., Neiderhiser, J. M., Shaw, D. S., Leve, L. D., Ganiban, J. M., & Reiss, D. (2012). Maternal self concept as a provider and cessation of substance use during pregnancy. Addictive Behaviors, 37(8), 956–961. <a href="https://doi.org/10.1016/j.addbeh.2012.04.002">https://doi.org/10.1016/j.addbeh.2012.04.002</a></p>
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<p>Massey, S. H., Estabrook, R., Lapping-Carr, L., Newmark, R. L., Decety, J., Wisner, K. L., & Wakschlag, L. S. (2022). Are empathic processes mechanisms of pregnancy’s protective effect on smoking? Identification of a novel target for preventive intervention. Social Science & Medicine (1982), 305(115071), 115071. <a href="https://doi.org/10.1016/j.socscimed.2022.115071">https://doi.org/10.1016/j.socscimed.2022.115071</a></p>
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<p>Schoenaker, D. A. J. M., Ploubidis, G. B., Goodman, A., & Mishra, G. D. (2017). Factors across the life course predict women’s change in smoking behaviour during pregnancy and in midlife: results from the National Child Development Study. Journal of Epidemiology and Community Health, 71(12), 1137–1144. <a href="https://doi.org/10.1136/jech-2017-209493">https://doi.org/10.1136/jech-2017-209493</a></p>
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docs/instruments/pregexp/preghealth/illness.md

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# Illness
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**Full Name**: Pex Bm Health Preg I Illness
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**Acronym**: Exp I illness
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**Table Name**: `pex_bm_health_preg__illness`
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**Construct**: Illness in pregnancy
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<div id="warning" class="warning-banner" onclick="toggleCollapse(this)">
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<span class="emoji"><i class="fas fa-exclamation-triangle"></i></span>
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<span class="text-with-link">
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<span class="text">Data Warning: ICD & Symptom Coding</i></span>
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<a class="anchor-link" href="#warning" title="Copy link">
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<i class="fa-solid fa-link"></i>
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</a>
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</span>
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<span class="arrow">▸</span>
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<div class="warning-collapsible-content">
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<p>There are potential issues relating to correct coding for (1) ICD codes from BioPortal ICD (used to capture reason(s) for medication use, ER visits, and hospitalizations) and (2) symptom codes from World Health Organization. Instruments using these systems sometimes encountered difficulties either for participants attempting to describe their symptoms or for HBCD Study team members trying to locate the correct code or term in the relevant databases.</p>
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<p>For Pregnancy Health-Illness, coding difficulty was noted for use of the ER for normal care (no diagnosis) or false alarms (e.g. thought water broke but it did not), resulting in the use of ‘don’t know.’</p>
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## Administration & Quality Control
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<tr><td><b>Child Specific</b></td>
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<td>No</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Pregnant Participant</td></tr>
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<tr><td><b>Administration</b></td>
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<td style="word-wrap: break-word; white-space: normal;">HBCD Study Staff (in-person)</td></tr>
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<tr><td><b>Visits</b></td>
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<td>V01</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>3 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</tbody>
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</table>
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## Instrument Details
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**Exp I illness** captures illness in pregnancy, including start and stop dates and whether the person had a fever.
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# Infant health- V2
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**Full Name**: Pex Bm Healthv2 Inf
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**Acronym**: Healthv2 Inf
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**Table Name**: `pex_bm_healthv2_inf`
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**Construct**: Delivery and birth outcomes
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<div id="warning" class="warning-banner" onclick="toggleCollapse(this)">
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<span class="emoji"><i class="fas fa-exclamation-triangle"></i></span>
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<span class="text-with-link">
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<span class="text">Data Warnings</i></span>
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<a class="anchor-link" href="#warning" title="Copy link">
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<p style="margin-bottom: 5px; padding-bottom: 5px; border-bottom: 1px solid #6b6b6b66;"><b>Out of Range Values</b></p>
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<p>Please note that out-of-range values were filtered (i.e. changed to "n/a") for Healthv2 Inf (<code>pex_bm_healthv2_inf</code>). Valid field values are documented <a href="../../../../changelog/versions/R1/#filtered-field-values">here</a> under Exclusion Criteria for the current release.</p>
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<p style="margin-bottom: 5px; padding-bottom: 5px; border-bottom: 1px solid #6b6b6b66;"><b>ICD & Symptom Coding</b></p>
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<p>There are potential issues relating to correct coding for (1) ICD codes from BioPortal ICD (used to capture reason(s) for medication use, ER visits, and hospitalizations) and (2) symptom codes from World Health Organization. For instruments utilizing these coding systems, it was at times difficult for the participant to name or HBCD Study team member conducting the survey to find the correct code/name in a databases.</p>
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## Administration & Quality Control
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<table class="table-no-vertical-lines" style="width: 100%; border-collapse: collapse; table-layout: fixed;">
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<tr><td><b>Child Specific</b></td>
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<td>Yes</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Birth Parent or Primary Caregiver</td></tr>
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<tr><td><b>Administration</b></td>
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<td style="word-wrap: break-word; white-space: normal;">HBCD Study Staff (in person)</td></tr>
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<tr><td><b>Visits</b></td>
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<td>V02</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>10 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</tbody>
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</table>
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## Instrument Details
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**Delivery and Birth Outcomes Assessed:**
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- Infant Characteristics:
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- Birth weight
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- Birth length
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- Duration of hospital stay
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- Newborn Conditions (e.g. neonatal abstinence syndrome):
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- Birth defects
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- Genetic diagnoses
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- Medical Interventions:
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- NICU admission and length of stay
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- Intubation
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- Adverse outcomes (e.g. bronchopulmonary dysplasia, congenital syphilis)
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- Medications (name, indication, status)
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- Healthcare access
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- Specialist visits
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- Newborn hearing test results
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# Medications
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**Full Name**: Pex Bm Health Preg I Meds
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**Acronym**: Exp I Meds
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**Table Name**: `pex_bm_health_preg__meds`
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**Construct**: Medications in pregnancy
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<div id="warning" class="warning-banner" onclick="toggleCollapse(this)">
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<span class="emoji"><i class="fas fa-exclamation-triangle"></i></span>
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<span class="text">Data Warning: RxNORM Medication Coding</i></span>
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<a class="anchor-link" href="#warning" title="Copy link">
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<p>There are potential issues relating to correct coding medication names from RxNORM. For Pregnancy Health-Medications, no option for preventive use made it difficult to code aspirin use for preeclampsia. Aspirin was specifically moved to the prenatal vitamin section a few months into the study. Some medications were also coded with dose, but this was not asked and should not be used.</p>
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## Administration & Quality Control
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<td>No</td></tr>
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<tr><td><b>Respondent</b></td>
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<td>Pregnant Participant</td></tr>
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<td style="word-wrap: break-word; white-space: normal;">HBCD Study Staff (in person)</td></tr>
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<td>V01</td></tr>
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<tr><td><b>Completion Time</b></td>
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<td>5 min</td></tr>
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<tr><td><b>Quality Control</b></td>
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<td>Review response distributions for outliers.</td></tr>
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</table>
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## Instrument Details
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**Exp I Meds** captures information on medications used during pregnancy (since last menstrual period), including prescription and over-the-counter medications. It includes details such as the name of the medication, its indication, frequency of use, and start/stop dates.
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